Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) or chronic fatigue syndrome (CFS) is a condition that causes you to feel so tired and exhausted that it interferes with your ability to complete your daily routine or even get out of bed. Your fatigue doesn’t improve with rest and gets worse after physical activity or mental exertion. Symptoms usually last for six months or longer.
A healthcare provider may refer to CFS as:
Myalgic encephalomyelitis (ME).
Systemic exertion intolerance disease (SEID).
What are the symptoms of chronic fatigue syndrome?
Symptoms of chronic fatigue syndrome include:
Severe fatigue lasting at least six months that doesn’t improve with rest or sleep.
For many people, the symptoms of CFS resemble other conditions, like the flu. Symptoms may come and go over time and increase or decrease in severity. CFS symptoms get worse following physical exercise or strenuous mental exertion (post-exertional malaise). Many of the symptoms of CFS make daily life difficult. CFS symptoms vary widely from person to person.
What causes chronic fatigue syndrome?
Healthcare providers don’t know the exact cause of chronic fatigue syndrome. Research suggests there could be several factors that might lead to CFS:
Immune system changes (how your body responds to stress or an infection).
Changes to how your body makes and uses energy.
What are the risk factors for chronic fatigue syndrome?
Women and people assigned female at birth are more likely to develop chronic fatigue syndrome than men and people assigned male at birth. Young children and teenagers can develop this condition, but it’s much more common in adults between the ages of 40 and 60.
There may be a genetic link to CFS. Studies found it can run in your biological family history. More research is necessary to determine what gene is responsible for this condition.
What are the complications of chronic fatigue syndrome?
For some people, the fatigue associated with chronic fatigue syndrome makes activities of daily living very difficult or even impossible. Research shows that only half of all people diagnosed with CFS work full-time or part-time jobs.
CFS causes depression. If you experience depression, talk with your healthcare provider. Effective treatments are available.
How is chronic fatigue syndrome treated?
Treatment for chronic fatigue syndrome may include:
Changes to your sleep routine.
Medications.
Activity management.
The goal of treatment is to reduce your symptoms so you can regain function in your life. Some people aren’t able to regain the level of health and function they had before their diagnosis.
Sleeping routine changes
Your healthcare provider may recommend the following at-home sleeping habits to improve your rest (sleep hygiene) before prescribing medications or starting other forms of treatment. These may include:
Developing a regular bedtime routine, like going to bed and waking up at the same time each day.
Not napping for more than 30 minutes total during the day.
Using your bed and bedroom only for sleeping and sexual intercourse. Remove all electronics.
Avoid eating large meals before you go to bed. Also, avoid alcohol and caffeine before bed.
Medications for chronic fatigue syndrome
A healthcare provider may recommend medications to treat your symptoms:
Nonsteroidal anti-inflammatory drugs (NSAIDs) for pain.
Clinical trials are ongoing to learn more about new medications that can treat your symptoms.
Activity management for chronic fatigue syndrome
Physical activity and mental exertion can make symptoms of fatigue worse. This is post-exertional malaise. A healthcare provider may recommend an activity management practice called pacing to treat this symptom. Pacing balances your rest and activity levels.
When you practice pacing, you learn what your limitations are. Limitations are like a fence. You want to stay within a certain area where it’s safe for your body. Overexertion happens when you step out of the fenced-in area; your body has trouble adjusting to the environment beyond its limits. This can make your symptoms worse.
A healthcare provider will work with you to set your physical and mental limits so you stay within a range that your body can handle. It might help to keep a diary or journal of your activity and symptoms to understand what you do and how it makes you feel. Once you determine your limitations, you’ll need to plan your activities around them to make sure you feel well enough to function.
Exercising or strenuous activity, like aerobic exercises, can make your symptoms worse. Your healthcare provider can help you manage the condition and find physical activities that are safe for you.
How is chronic fatigue syndrome diagnosed?
A healthcare provider will diagnose chronic fatigue syndrome after a physical exam and mental health evaluation. There isn’t a specific test to diagnose CFS, but tests (like blood or urine tests) help your healthcare provider look for possible causes and rule out conditions with similar symptoms.
The diagnostic criteria for CFS, or the things that your healthcare provider will look for during an exam, include:
Severe fatigue that lasts at least six months. Fatigue doesn’t improve with rest or sleep.
Difficulty getting restful sleep.
Fatigue that gets worse after mental or physical activity.
Orthostatic intolerance (inability to sit up without feeling symptoms) and/or problems with cognitive function (thinking and memory)
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